10 Years With RA: What’s the Impact?
I am going on ten years with rheumatoid arthritis (RA), which is just over a fourth of my life.
During these ten years, I have completed a master’s degree, became a chronic illness advocate, wrote and had published over 300 health articles and so much more. But not everything that has happened has been good, and there have indeed been plenty of trials due to RA’s effects.
There have been far too many moments where giving up felt like the only option, and there will be many more. All that joint pain and inflammation can take on a life of its own and complicate any sense of normalcy.
How Rheumatoid Arthritis Has Impacted My Life
Here are six ways in which RA has affected my life over the last ten years, and how it might affect yours.
1. Chronic Inflammation
RA is an autoimmune disease where your immune systems attacks the lining of your joints, but RA’s effects aren’t just limited to your joints. The inflammation also affects the organs, including your heart, lungs, skin, and eyes.
My levels of pain and fatigue have varied in the past 10 years. I have had periods where my symptoms have been mild, and periods of debilitating flares, and I have not experienced drug remission.
According to the Arthritis Foundation, your RA is in remission when you have:
- One or few swollen joints.
- One or few tender joints.
- Joint inflammation of one or less on an arthritis scale of 1 to 10.
- Blood markers showing little or no inflammation.
I am fortunate to experience more good days than bad, but even on good days, I still experience pain, especially in the morning, and when I lay down at night. I also struggle with eye and gum inflammation, dry and irritated skin, fatigue and gastrointestinal symptoms.
2. Taking Care of Yourself
Your doctor considers RA successfully managed when you need to make few or no changes. But it is common for joints to feel painful and stiff in the morning, even if your RA is managed or you have mild to moderate RA.
Everyday tasks, such as laundry, cleaning, cooking, and yard work become challenging with time, as they have for me. Support aids and creativity can help you care of yourself, your family, and home easier. Simple things may include:
- Wearing comfortable and easy to put on shoes.
- Using kitchen gadgets, such as electric can openers, that put less pressure on hands, wrists, and fingers.
- Having an RA-friendly computer station – whether at home or work – that includes the right chair, keyboard, or mouse, can make life with RA less painful.
Most of us with RA want to manage everyday life on our own and despite our symptoms, or don’t have a lot of support and help. But if you are lucky enough to have friends and family who are supportive, ask for help and do not push them away, as their support and assistance are vital to managing RA.
3. Continuing to Work
Work is important for people with RA and not just because they need to earn money. Jobs offer self-confidence, financial independence, and socialization opportunities.
Continuing to work has been a great way to distract from my disease and remove financial worries. Most people with RA would rather be working, but unfortunately, severe limitations have made it impossible for them.
If you want to keep working and are finding RA affects your ability to be productive, it might be helpful to talk to your employer. The Americans with Disabilities Act (ADA) of 1990 requires an employer to provide “reasonable accommodations” to people with RA.
Reasonable accommodations must not cause undue hardship to the employer. Accommodations may include an RA friendly workstation or adjusting break times, work schedules, and deadlines to help individuals perform their jobs as productively as others without RA.
Next page: Three more ways RA impacts one’s life.